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This paper provides an overview of the nutritional management and care of people living with motor neurone disease (MND) in a specialist nutrition clinic. A specialist pathway of care has been developed to enable people living with MND to undergo a percutaneous endoscopic gastrostomy (PEG) procedure in a safe way; the pathway incorporates attendance at a dedicated nutrition clinic, a stratification tool to identify patients with a high periprocedural risk and a PEG insertion team with significant experience in the MND population. Since this pathway has been in place, gastrostomies have been successfully placed in patients with a forced vital capacity (FVC) of less than 50%; previously, this would not have been possible.

Original publication




Journal article


Br J Community Nurs

Publication Date





360 - 363


Motor neuron disease, PEG, nutrition, pathway, Ambulatory Care, Gastrostomy, Humans, Motor Neuron Disease, Nutritional Support, Patient Acceptance of Health Care, Patient Care Team, Vital Capacity